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The tips of my son Deryn’s fingers were hard and black from a superbug infection.His nails were peeling away and any remaining live flesh was covered in weeping sores.

After all, I’d never seen anything positive come of smoking cannabis, and in my days working in nightclubs, illegal drugs had been my enemy.It was New Year’s Eve so staff levels were minimal. Families do turn to alternative therapies, internet-based solutions and even outlandish claims that could help their child become pain-free and survive.I drew up 5ml of the honey-like substance, which had a sweet, floral flavour. At the end of life particularly, it is understandable to feel that conventional medicine may have failed and look elsewhere.His bravery attracted national attention and some of his favourite celebrities, including Paul Hollywood, Pauline Quirk and Linda Robson came to meet him.Deryn was actually looking forward to dying and considered it his next adventure.But if it could help my darling boy escape his daily torment, I was willing to try it.Now we had to find some cannabis and then work out how to make the liquid that could ease Deryn’s pain.In 2010, when he was just ten years old, he had been diagnosed with leukaemia.Eighteen months later, he was told he had a secondary cancer, the extremely rare Langerhans cell sarcoma.Only 50 cases have ever been recorded and only five people in the world currently have it.But no one had ever been found to have the two cancers combined, making Deryn unique. By 2013, after nearly four years of hospital treatment, it seemed that the only thing left for him were opiate drugs to ease the pain as he reached the end of his life.

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